Celebrate Every Day

by Shannon · 11 comments

For those who’ve asked: I’ve been busy. Really, really busy.

Neuromedical CenterWhen we returned from our cruise, I had a doctor’s appointment the following Monday. I was feeling dizzy before the cruise, so my husband went with me to see a different neurologist for a second opinion. My family doctor recommended this since we were dealing with the brain. Boy, am I glad we did. It seems that the first neurologist was being very conservative and didn’t tell me everything found in the MRI. Yes, there was a tumor. It might be Mr. Miyagi the Meningioma, but what it also could be is a Leptomeningeal Metastatic Lesion of the Dura.

Things became real serious real fast. A Leptomeningeal Metastatic Lesion is a tumor caused from a cancer somewhere that has already metastasized. I was sent immediately for a chest x-ray and boob squeeze mammogram for a start. I also walked out the neurologist that day and got the news from my attorney that I won the domain name dispute that had been filed against one of my websites. I couldn’t feel victorious about the arbitration because not only has it financially devastated my family, but I didn’t see it as a win or lose situation, as it wasn’t a game to me. I also knew that this still wouldn’t get certain people to quit harassing and threatening me. Boy was I right. Not two days later, they sent me another threat and I can predict they’ll send another when they read this. I don’t care about those people anymore and I really wish they would move on and get over it. I have to worry about myself and whether I have three months to live or if I’ll one day enjoy the life of a retiree.

Here it is a few weeks later and I’ve been seeing an oncologist. I’ve had more blood taken from me than any character from Twilight or True Blood could consume. I’ve been through lots of tests and I have lots more to go. But, I am still planning my future as if nothing is going on. It isn’t denial, just more of a security blanket for my sanity that I can get through this and get back to Life. The good news is, the oncologist is on top of things and he’s pretty confident that I’ll be okay, but brain surgery may be in my future.

This sounds morbid, but I’ve been going through all of my things and cleaning out every closet and drawer in my home, just in case. I don’t know what will happen in the coming weeks and I don’t want to leave clutter for my husband and mom to have to go through. I’ve decorated my house for the biggest Christmas ever too. I’ve been getting up earlier each day and making hot chocolate with whipped cream on top for the kids to enjoy before school. My husband even gave up his seat at the LSU game so that I could attend with both kids (we only have 3 tickets).

LSU Football wth the kids

I’ve learned to say NO. I’ve learned about role reversal, meaning instead of me being the one to help out, I am the one being helped. I’m very independent and accepting assistance is really hard for me. I’ve also been reminded just how small of a city I live in and how news travels fast. I think every church in this city has me on their prayer list and I am very grateful for their thoughts. People I never would have expected have come up to me to offer a word of encouragement, a squeeze of the shoulder, or a hug. On the other hand, a few people have surprised me with their silence or indifference. I’ve learned that I am more than a brand name. I am me, whether I am associated with a particular blog or not and that people value me for me.

I do want to thank each and every one of you who have been a part of my life, either virtually or in real life. I appreciate the comments made on this blog and any of my blogs and websites. Inside, I just don’t feel like I have some terminal illness, so I’m confident and hopeful that I’ll be at SxSw, the next Blog World Expo, and experience many more trips. I’ll serve many more early morning hot chocolates to my kids, sit on my patio sipping Community Coffee with my husband and hopefully enjoy another cruise. And, I’m going to continue to make fun of my mom’s driving (yes, Mom, it IS worse than waterboarding).

Do me a favor. Don’t wait for a special occasion to enjoy Champagne. Celebrate every day.

Celebrate Each Day

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{ 11 comments… read them below or add one }

1 Kaye December 3, 2009 at 9:39 am

O.K. my driving can be a little scary….blind in one eye and can’t see out the other. I just love scaring you it makes me laugh. I should tell you now I had CIA training.

2 Keith December 3, 2009 at 9:43 am

As usual, big virtual hug and positive vibes … and a REAL hug when you come over to see Hadrian’s Wall.

(I’m doing an article about it right now!)
Keith´s last blog ..Reinettes My ComLuv Profile

3 Leigh December 3, 2009 at 10:20 am

Big hugs, Shannon. You know I’m praying.

4 Sheila @GoVisitHawaii December 3, 2009 at 10:30 am

Shannon,

Thank you for sharing and inspiring so candidly.

I feel so powerless as I read your updates — wishing there was something I could do to fix the situation. I may be powerless, but I know that God is so powerful. I pray for you daily.

With my aloha,
Sheila
Sheila @GoVisitHawaii´s last blog ..My 3 Best Hawaii Travel Secrets My ComLuv Profile

5 A Maui Blog December 3, 2009 at 10:39 am

I am “wordless” at the moment. but want to give you a CYBERHUG and thank you for sharing this with us. We are here to support you in whatever way we can.

Liza
A Maui Blog

6 Denise December 3, 2009 at 12:02 pm

Anyone who knows you knows you’ll kick Mr. Miyagi’s “ass.” I don’t know the details, I do know your integrity. Sending prayers and good thoughts your way.

7 Mark H December 3, 2009 at 5:05 pm

My thoughts and best wishes from distant Australia as you fight life’s battles. I know you’ll come out stronger and better – celebrate life and believe in positive thought.
Mark H´s last blog ..Fairmont Banff Springs Hotel (Canada) My ComLuv Profile

8 Dot December 3, 2009 at 5:45 pm

and in the middle of all this, Shannon took time to call me to encourage me on my new blog. She is definitely keeping a postive outlook. I feel that she will be fine. She is a fighter and a winner. Thanks for updating. You are in my private prayer lists as well. Mine included.
Dot´s last blog ..My Three Best Travel Secrets My ComLuv Profile

9 Barbara at Hole in the Donut Travels December 4, 2009 at 4:34 pm

I just know this will all turn out fine, but it is a big reminder that we need to stay in the moment and be fully present every moment of our lives, rather than obsessing about the past or worrying about the future. I’m having a “virtual” toast to you. And sending energy for a speedy resolution of the medical problems and complete return to health. Much love to you.
Barbara at Hole in the Donut Travels´s last blog ..My Three Best Travel Secrets My ComLuv Profile

10 Sherry Ott December 6, 2009 at 8:15 pm

Shannon, you are truly amazing. I hope you realize that. I hope that in addition to accepting more help from people which is difficult for an independent person to do – you also realize how strong, smart, creative, and beautiful you are. I’m sure that the decision to share this with your blogging audiences wasn’t easy – but thanks for letting us know. I’m a fan and will be thinking about you as you take on this bump in your road wishing you the best. I will be taking your advice about living life to the fullest – I try to do it naturally, but your story is a great reminder. All my best.
Sherry Ott´s last blog ..Annapurna Itinerary My ComLuv Profile

11 Patricia December 23, 2009 at 7:57 am

It is surprising and obvious at the same time, that I say the same things that you say and think same thoughts that you think, having dealt and still dealing with a similar health situation myself. I so much understand : “l am still planning my future as if nothing is going on. It isn’t denial…” and my skype message was similar to the title of your post …only i started with CELEBRATE EVERY DAY to then change it to CELEBRATE EVERY MINUTE…..now it changed again and i want to share it with you MERRY EVERYTHING AND A REWARDING 2010! Patricia

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